Author: Bill » Wed Jul 21, 2010 1:48 pm
Thanks for that Ralph. I do what I can just quietly, as I still work full time. An interesting thing happened to me about three months ago. I had a call at home from a GP at our local practice, apologetic for asking me, but she had a patient who had recently been diagnosed with PCa and was very confused about the help he was getting from the local specialist at the Public Hospital.He had had a biopsy and a few scans and was confused about what his next step should be. Should he pursue radiation et al, or go down the surgery route and had asked the specialist "what do you recommend?" The specialists response was something like " we are not allowed to make a recommendation. You have to make your own decision based on the information I give you".
No wonder the poor bloke was confused. Anyhow, I was happy to talk with him and went around to his house armed with my info kit, which includes several web sites including this one and our local NZ site, and the UK site with the "tool kit" which is excellent, and the Aussie site YANANOW which is also excellent. A video of others in his situation, a good book and a few other bits and pieces. I have had follow up contact with him and things are a lot better and things are happening for him and he is quite relaxed about it now and asking his own questions.
Then about a month ago I had another call from her, GP that is, with another patient who has had a bad experience with his biopsy at the Public Hospital and didn't want to go back etc, so I went to see him and he is a lot better about it now and called in to see me last weekend to return my kit and he is going to have anther biopsy when he returns from a planned holiday.
They have been comfortable with me not being a medical person and I am careful to stress that my experience is through having been in their position myself and I can give them the other side. My GP is grateful and I am happy to help. Anything to help the fight. I attended a funeral last month of an old friend of nearly 40 years standing who was diagnosed at an advanced stage. I get so angry at our Ministry of Health who do not have an education process for men. It is a lottery. Now I'm waffling. Sorry folks. All the best- Bill from NZ. Cheers.